Hi,

I was diagnosed with SPS and MG in 2009. I have found a similar site with communications with people who have MG but no one seems to have both diseases which I understand is very rare. I was hoping this site would have people with more experience with SPS.

I am presently taking five medications just to make it through the day. I have tried six rounds of IVIG which did very little to help either disease. Now my neurologist (who is very conservative) has decided to go the plasmapheresis route. He doesn't know if this will show any improvement. All of his collegues have never seen anyone with both MG and SPS, so there is no experience for him to rely on in the treatment. I'm scheduled for 12 treatments and have completed four so far.

Has anyone tried plasma exchange? If so did it help with your symptoms?

Thanks for any responses.

Southern Bell