i am not sure what type of eds i have...probably hypermobile type, maybe vascular but that seems less likely. i definitely have bad POTS and maybe neurocardiogenic syncope (??) the older i get the worse it gets. im surrprised i havent fainted at work yet.

my heart rate and blood pressure are all over the place. recently i found out my electrolytes are out of balance too, my magnesium was .5 and my potassium got up to 5.7. POTS is linked to salt wasting and a hormone called aldosterone. i just tested for mine this morning to see if they were low, i'll post the results when i get them. if my electrolytes are still messed up and my aldosterone is normal, then maybe its my kidneys

you are VERY lucky you have specialists to go to. what meds have you tried for DA? i guess i should at least see a cardiologist. right now i am spending all of my money on stabilizing my shoulders with physical therapy. i believe my tos was started by my shoulders being too hypermobile. people with eds (especially women) must be predisposed to getting TOS.

i cant take it much longer either. im amazed i can get up and go to work in the morning. im in so much pain and constantly foggy headed and dizzy.