i am not sure what type of eds i have...probably hypermobile type, maybe vascular but that seems less likely. i definitely have bad POTS and maybe neurocardiogenic syncope (??) the older i get the worse it gets. im surrprised i havent fainted at work yet.
my heart rate and blood pressure are all over the place. recently i found out my electrolytes are out of balance too, my magnesium was .5 and my potassium got up to 5.7. POTS is linked to salt wasting and a hormone called aldosterone. i just tested for mine this morning to see if they were low, i'll post the results when i get them. if my electrolytes are still messed up and my aldosterone is normal, then maybe its my kidneys
![Mad](images/smilies/mad.gif)
you are VERY lucky you have specialists to go to. what meds have you tried for DA? i guess i should at least see a cardiologist. right now i am spending all of my money on stabilizing my shoulders with physical therapy. i believe my tos was started by my shoulders being too hypermobile. people with eds (especially women) must be predisposed to getting TOS.
i cant take it much longer either. im amazed i can get up and go to work in the morning. im in so much pain and constantly foggy headed and dizzy.