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Junior Member
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Join Date: Apr 2011
Posts: 12
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Junior Member
Join Date: Apr 2011
Posts: 12
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Quote:
Originally Posted by daniella
I am not familiar with this other then this would make me worse. I know we are all different but having an electroid on my rsd area would give me so much pain and also delayed pain. Does your husband have sensitivity issues? It is very concerning to me that they would sell a product like this without a person to at least teach you how to use it properly. Is there another doctor that you could call in your area that could? Maybe if you call the company they could give you some direction. I am so confused so the Dr is bringing on a law suit to anyone who says anything negative? I think if this is the case you need to find a new direction. This is very odd. I hope your husband gets relief
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I am still learning about RSD, since this is the first time I have even heard of it let alone known anyone with it, I understand there is one that is sensitive to cold & the other to heat, my hubby has the one that is sensitive to heat, even a lukewarm shower is enough to trigger an episode. So in part yes sensitivity to anything warm, be is water, or heat in general. He can't drink warm or hot coffee due to it bringing on an episode, spicy food. He does better on cold days & is an excruciating amount of pain on hot days, when the weather is bad so is his pain level. At times his feet & sometimes his hands as so swollen they feel like they are about to burst open, but a great deal of the time since we got the machine his feet don't swell up & look normal, yet the pain persists. He doesn't understand since we have read that there should only be a one to two degrees difference in normal body temperatures but yet for the most part he has little or no pain when the temperatures are 21c-71f or below any higher than that he suffers to the point where he wants to die rather than live like this.
No there is no doctor that is able or willing I don't know which, as I said he was told by someone else on another forum site that as he wasn't a patient of this Dr Rhodes guy he can't be helped.
Obviously the STS machine was designed to be used by Dr Rhodes & his team, the guy who we purchased it from only has limited knowledge of it's use, he told my hubby all he could but it's not the machine we have the problem with it's knowing which protocol he needs to use for his feet as that's where most of his pain is centred, if as we have heard that when a protocol stops working you then have to try another, what we don't understand is what protocols are they, are they in the book that comes with the machine or does this Dr Rhodes guy keep the answers close to his chest. If anyone has used this thing for RSD of the feet & would be willing to help it would be much appreciated. Hubby is at the end of his rope as the pain is not easing any, & I have no way of helping the man who means everything to me. Today he has been in so much pain that he has taken his meds & nothing is working he hasn't used the STS in a few weeks due to the pain he is in right now, his chest is hurting so much, his arms are becoming numb due to the body trying to protect the brain & vital organs so it's the bodies way of keeping the vital organs alive, uncontrolled diabetes due to the RSD & anxiety attacks that he feels there are those who can help but won't or can't is the story he keeps getting told.
As far as I am aware & I only know what I have read when I stumbled across when searching for any information regarding the STS machine but it seems the Dr's lawyers are sending letters to those they feel are saying anything that may adversely effect the opinions of others who may have turned to him for help be it from a bad personal experience or those that see what he is offering as false hope. I don't really know but that's the opinion I got.
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