Alan's mother had Guillian Barre syndrome and died at the age of 53. We told this to EVERY SINGLE neurologist we went to. Everybody said "this has NOTHING to do with Alan's neuropathy". Then (about 7 years ago), Alan was diagnosed with CIDP and put on IVIG infusion.

When I asked the neurologist who diagnosed him with CIDP, if this had ANYTHING to do with Guillian Barre, she said "no, it's not connected"

Then, later on, I went to a CIDP website and guess what? CIDP, is a variant of Guillian Barre.

So who is one to believe. Not the neurologist.

And because the IVIG did nothing for his neuropathy (we thought it would help his pain and were later told it is not for pain, it's an immune system booster), and she took him off of it because it did nothing.

So we were then told once again "It's idiopathic" And THEN, because he developed back problems in his 60's, we were told "Well, it might be related to his back".

but because we never knew that his sister had symptoms for over 20 years, we did not know about this genetic link.

So NOW what we know is that Alan's mother had Guilliam Barre and died at 53 (she developed this condition in her late 40's).

Alan's sister has had neuopathic symptoms for over 20 years (she developed this in her 40's)

Alan has neuropathy and developed this in his 40's

ANYONE SEE A PATTERN HERE!!!!!

Melody