Teresa, I'm sorry to hear you're having such a hard time. I haven't been on the forum much so I don't know what your symptoms are to cause you to be at the point of DBS. I did want to tell you that Stalevo didn't work for me at all. From the very first dose, it caused me some major problems. It's funny that I take the same meds that are in Stalevo (Comtan and Sinemet) with good results but the Stalevo really wasn't a positise experience for me.

Also, have you tried any study meds? I'm part of Kiowa Pharmaceutical's testing of a new drug, Istradefylline, aka the KW-6002 study. Istradefylline works on a system (adeno?) that no other med works on. It is an awesome drug, Teresa! So awesome that I went through medically unnecessary surgery last summer just so I could qualify to stay in the study. So, if it's available to you somehow, get it! It makes me a different person!

Wishing you all the best as you prepare yourself for the next step ....

Donna

Donna