So last night I started to get the same symptoms as I did last week that required me to stay in the hospital a few nights. The weakness, the swallowing difficulties, the SOB. So I went back to the ER. They gave me some solumedrol, and drew some blood. Long story shorter, they decided to ship me to the University where my neurologist is. I was willing, especially since I would finally be in the place where I could get proper treatment. So after a long ride, I was in the ER there.

My hopes was that they would start the plasma pheresis, what the doctor has been saying I need. So far he hasn't been able to get the insurance to approve it out patient, and had also considered just admitting me to get it started if i met criteria... which I think i definitely do by now....
Instead, they increased my mestinon to 90-120mg every 4-6 hours, and told me to come back on Thursday to see my neurologist and he would be doing an EMG...

I'm sooo confused. My last EMG came back normal, the neurologist was aware of it, and wanted to do the pheresis. Now he wants to do an EMG... for what, cruel and unusual punishment?

I don't get it.