
Hi Kelli & Kristen
My heart goes out to you both. I can't imagine seeing my boys suffer with such pain and limitations or to experience it myself. My husband has had RSD in his left leg for 1 1/2 years. The pain is manageable for him. The limitations are harder.
I am writing because we saw Dr. Maleki for the first time about 2 weeks ago. He is very kind and knowledgable. He alots an hour for a new patient consultation but will take longer if necessary without making you feel rushed. We did not have to wait long for the appointment. He's no longer working with Dr. Schwartzman. Here is where his office is located:
Dr. Maleki
100 N. Presidential Boulevard
Bala Cynwyd, PA
1-610-949-7250
I have to say that while he was thorough, kind and knowledgeable, George had a severe delayed reaction to the exam. Common, so I hear, from other RSD patients after a manipulative exam. You may want to limit as much as possible the manipulations.
There are websites for teens. Perhaps you've already found them. I hope so. Here is one
http://www.angelfire.com/amiga/rsdhopekids/rsd_is.htm
Best wishes,
Teresa