Misspenny do you have marfan body too or any scoliosis?What did you score on the Beighton - I got 8/9 but then I am 42! They say that only people with EDS can stand up but lift both big toes off the floor - whether this is true or not I do not know. I also have see through skin which is very velvety, soft and stretchy, nodules in my shins....ooh am I painting a pretty picture lol