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Junior Member
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Join Date: Apr 2011
Posts: 12
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Junior Member
Join Date: Apr 2011
Posts: 12
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Quote:
Originally Posted by betsykk
My daughter would be given different protocols by Dr Rhodes every few weeks. He does not share this information with you but instead he will fax you the newest protocol to try. Have you tried calling his office and tell them that you have the machine? Maybe someone would send you some protocols but I tend to doubt it.
Like I said, my daughter was in agonizing pain. Ketamine infusions have given her great relief and are approved by the FDA for breakthrough pain. Has Dr Rhodes latest machine been approved for pain management? I would start looking into another method of treatment if you can't get ahold of protocols.
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Yes we have tried but again we were told that without him being an existing patients it's against the law for him to help. We would have even been willing to see someone locally if he didn't want to share the information outside medical circles. So that was why he wondered if anyone who has used the machine & has RSD/CRPS particularly in their feet would be willing to share information regardless of whether or not it works. Since it seems so many doctors out there either refuse to believe, don't want to help or unless it comes down to the almighty dollar, no one but other patients & their families know the extent of the heartache it causes. Now it seems that there are those who are being gagged not to say anything especially those that have had a bad experience. But how can others make an informed choice without ALL the relevant information, that would be like going on a roller-coaster ride that isn't safe, how can one make that call when there are vital parts that are not allowed to be discussed openly. My partner & myself are not interested in why this kind of action came about all we would like is someone ANYONE who may be able to help me help the man I love. I have no idea whether or not this latest machine has approval yet or not. I guess that information is not privy to those who are either dissatisfied customers or not patients.
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