Another great initiative by Tom Isaacs in the UK:

http://www.parkinsonsmovement.com/

excerpt: (visit the website for the entire text)

PARKINSON’S MOVEMENT is a new concept within the Parkinson’s community, based around the most important resource available — ourselves!

Nobody understands Parkinson’s better than us, the patients. Nobody understands the condition, the treatments and their side effects better than those who live with it every day. And nobody knows what we want from future treatments better than us.

We believe that Parkinson’s patients should take a bigger role in our own present and future treatment. And we will do this through knowledge, information and the sharing of collective experience. We need to learn about our condition, to manage it, to understand it and above all to take control of it. We need to fight ignorance and fear with knowledge and hope.