Thread: Frustration
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Old 08-10-2011, 10:45 AM
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teresakoch teresakoch is offline
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Join Date: May 2010
Location: Fort Worth, Texas
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teresakoch teresakoch is offline
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Join Date: May 2010
Location: Fort Worth, Texas
Posts: 199
10 yr Member
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Just FYI - Mestinon is one of those drugs where "more" is most definitely not always better. It's too bad that most doctors don't understand this.

In many cases, when you find a dosage that works, if you need "more" you decrease the TIME INTERVAL between doses.

If your body gets too much Acetylcholine, you'll go into a cholinergic crisis. Unfortunately, the symptoms are almost identical to those of a person who isn't getting enough ACh.....

And let's face it - we are all dealing with a disease that is only diagnosed about 600 times a year in this country, so even neurologists don't always know what is going on.

If you don't think you are well enough to leave the hospital, then INSIST on being allowed to stay. If they balk at that, tell them that you will be contacting an attorney to take your family's malpractice case if things go South.....
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