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Old 08-11-2011, 12:59 AM
chiarichic chiarichic is offline
Junior Member
 
Join Date: Feb 2010
Posts: 33
10 yr Member
chiarichic chiarichic is offline
Junior Member
 
Join Date: Feb 2010
Posts: 33
10 yr Member
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lovemy2girls,
I was diagnosed in 2003 with an 8-10 mm herniation by a neurologist who had little experience with Chiari Malformation. She second guessed my symptoms and said they were caused by "stress".....I responded with "Yes, I am under significant stress because I am not able to get the appropriate healthcare for an obviously severe health issue." She promptly began to write referrals for me. You have to educate yourself and be your own advocate. The diagnosis "borderline Chiari" really does not do justice to the real issue which is whether your CSF is flowing properly. You could have minimal herniation yet your spinal fluid could be blocked and causing your numbness, tingling and severe headaches. I can tell you with much certainty that most docs do not have the experience needed to treat a Chiari patient. Please find one who specializes in Chiari. And be sure to keep us all posted !! God Bless !!
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