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Old 08-11-2011, 03:36 PM
Crampton Crampton is offline
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Join Date: Aug 2011
Posts: 1
10 yr Member
Crampton Crampton is offline
New Member
 
Join Date: Aug 2011
Posts: 1
10 yr Member
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I've been a bit worried about the vibrating sensations and I'd really appreciate some feedback from you.

I've got an idiopathic full-body sensory neuropathy. Whether it's autoimmune or not I don't know, although I do suffer from an undifferentiated connective tissue disease as well. I've led a very healthy lifestyle, by the way, and have no inflammations or infections.

Half a year ago the vibrations started, continuing for several weeks or a few hours at a time. I wake up, sometimes physically trembling in my hands, or my head is trembling discreetly but very distinctly – and fast. This was also the onset for two new symptoms. The sudden spasms I've had before but not like this. When I've gone to bed they start after a few minutes, one spasm after another with around 30 seconds inbetween; a leg, an arm – I've been throwing my arm in the wall several times with a force that might have brought the walls of Jericho tumbling down – the torso itself. This also includes unvolontary movements while I'm still fully awake: one of my hands closing very slowly into a fist, a big toe turning slowly upwards until it hurts, things like that. And the last symptom, very strange: everything that I lean against seems to be moving to and fro. It's like lying in a waterbed. Slowly the mattrass is moving in waves under me, as if I were lying in the water at a mediterranean beach. Sometimes the bed under my torso begins moving sideways, from one side to another without a break (I mean, that's how it feels like). When I'm sitting in a chair and leaning back, the back of the chair is almost wriggling.

My GP ordained Sifrol, a med given to people with Parkinson's disease, that reduced the number of spasms considerably, but the other symptoms persist. They make my life more interesting than I'd care for. My rheumatologist and my neurologist wash their hands, so to speak, and suggest that it seems as if the autonomic system is being involved.

Am I the only one experiencing this, apart from the vibrations?
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