Magnate
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Join Date: Aug 2006
Location: Queens, NY
Posts: 2,857
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Magnate
Join Date: Aug 2006
Location: Queens, NY
Posts: 2,857
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I agree with stagger--
--in that a lot of these Facebook sites for causes and such (not just for neuropathy) seem to be set up so that they become the mouthpiece or organ of individuals pushing a particular point of view, and such individuals often do have control issues and are not tolerant of alternative viewpoints.
I do think that one way in which Neurotalk is different is that we do try, to the extent we are able, to document our own individual experiences with scientific evidence, and over time we have built up quite a database of information; certainly the knowledge base rivals any other website and the level of expertise rivals that of any university medical center. And I think Dr. John, the moderators, and other experts do a very good job of "curating"--allowing discussion to be wide-ranging and exercising reasoned judgment as to what constitutes greater or lesser evidence (not an easy job).
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