If you've been lurking here all this time, I suspect you've already been on the Myasthenia Gravis forum & other places hereabouts. Good for you! I'm so glad you've decided to post.

I feel a familial sort of connection with you since myasthenia is for me a family disease that I've known all my life. My dad got his confirming diagnosis from a panel of Army doctors in September, 1945--a month after he found out I was coming. Back then it was a fatal diagnosis; he was told he wouldn't live to see me start school. Wrong! He died not so long ago.

I've had symptoms of something for 15 yrs, & they keep looking at my dad's myasthenia. I don't think that's it, but we'll see. In the meantime you are arming yourself for prolonged warfare. Good!

My dad worked very closely with scads of docs over the years. He was an active partner with his doctors--never waiting for action, always pushing for more & demanding that he be a direct & equal participant. He was lucky to have my mom with him, a partner in his battle. That helps.

My prayers & very best wishes go out to you. Keep coming back. Stay in touch. Ask questions. Then ask more. Till you don't have any left.