Hi Kathy,
She just had a pacemaker adjustment. She is better, the pacemaker was the best thing we have done. She has had such a great summer and has totally abused her RSD with fun! I am worried about the Methadone. She hardly every takes pain meds. She is on Cymbalta only for the RSD. they added Neurontin for a few weeks to try to calm it down. I fear the only hope right now is Ketamine. Unfortunately, I have to go back to work and the only time I can take her is in November. Last year was crazy with missing work.
Hopefully, the flare will calm down, I have contacted her OT/message therapist, she can usually get it in check.
Quote:
Originally Posted by keep smilin
Sandy,
Iam so sorry for Lindsay's flare...Is her tummy not feeling well either??? I tried Methadone and could not take it...it made me very sick to my tummy... I tried it twice matter of fact and results were the same both times!! It is a major narcotic and I truly agree with your concern!!! ESP at Lindsay's age..
Again, I'm sorry....
Hugz, Kathy
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