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Old 08-14-2011, 06:17 AM
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In Remembrance
 
Join Date: Sep 2006
Location: about 45 minutes to anywhere!
Posts: 3,086
15 yr Member
lou_lou lou_lou is offline
In Remembrance
lou_lou's Avatar
 
Join Date: Sep 2006
Location: about 45 minutes to anywhere!
Posts: 3,086
15 yr Member
Lightbulb the neurologists arent always movement disorder specialist

Quote:
Originally Posted by lindylanka View Post
Both Vicki's posts at PUK and some of the interviews she has done, and the film itself, are helping to open up some of these difficult areas of Parkinsons. The questions are left open, though there is no doubt that the medication, treatment, has caused these problems. A very courageous look at what some of us go through. Well worth the watch.

If you or someone you know is suffering from the adverse effects of PD meds, discuss it openly with your neuro, and if they are not well aware of these issues, point them in the direction of info that supports this. Parkinsons UK has an awareness campaign on compulsive and impulsive aspects of PD, as do many of the other orgs. See their site for more information. Vicki's film highlights the need for better medication and more understanding. Take courage from her openness, and get help with these problems. One of the clear messages that comes over from the film is that if you are aware that it is happening to you, and your family and friends understand how you are affected, there is a better chance of dealing with it.

This does not mean it will not be a painful or problematic experience, just that knowing about the potential for it is better than not knowing and waking up one day with your life in shreds, and not quite knowing how it happened.

Would also like to congratulate Vicki!
the neuro's i have had dont even know much about PD?
or the drugs...
ER doctors are usually not gifted with the PD knowledge either?
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with much love,
lou_lou


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, on Flickr
pd documentary - part 2 and 3

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Resolve to be tender with the young, compassionate with the aged, sympathetic with the striving, and tolerant with the weak and the wrong. Sometime in your life you will have been all of these.
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