What a 3-yr ordeal you've been through. It always amazes me what a simple thing, like capping a tooth, can lead to such misery & confusion.

Since this started as a dental issue, how about starting there? http://neurotalk.psychcentral.com/forum89.html

Start a thread there & repost this--or maybe one of the administrators will come along & move it for you. Read the posts also in case something there triggers a connection for you. Folks there may suggest other directions for you to make queries, but I think this is a place to start.

Occipital Neuralgia and other Cranial Neuralgias Forum. There you'll find discussion of Occipital Neuralgia, Glossopharyngeal Neuralgia, Nervus Intermedius (or Geniculate Neuralgia), and Vegal and Superior Laryngeal Neuralgia. http://neurotalk.psychcentral.com/forum105.html

Here's the link to the Trigeminal Neuralgia Forum: http://neurotalk.psychcentral.com/forum26.html

I can only imagine the frustration you must feel. I've been trying to get something diagnosed too for a while unsuccessively, & if you're like me it occasionally tips over into outright fear...especially around 3 a.m. This is a good place for information, but also a wonderful place for finding support & help through the dark hours when you think there just isn't an answer to be had for anything .

Come back, Linda. Keep us up on treatment. Ask questions, get some virtual hugs, rant when you need too...we're here for whatever we can do to support you in this.

Take care.