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Old 08-14-2011, 07:40 PM
daisy.girl daisy.girl is offline
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Join Date: Feb 2010
Posts: 258
10 yr Member
daisy.girl daisy.girl is offline
Member
 
Join Date: Feb 2010
Posts: 258
10 yr Member
Default How many here on Gilenya?

I am just wondering how many people here are on gilenya?

Can you tell me any side effects that you have had?

I just started gilenya on Tuesday this week, and after 3 doses, I was having burning eyes, hip/leg pain, nausea, and this horrible feeling of shaking/tremors, like I was on speed.

My neuro told me not to take it Friday or Saturday and restart it on Sunday.

Well, I felt better on Friday and Saturday, and just took my dose 2 hours ago, and I again am having the leg pain, burning eyes, and nausea.

I want to give this long enough to work, but at the same time, I don't want to continue if I am having an allergic reaction....oh how to know with such a new med!!
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Dx: RRMS Jan 2010;
LDN: March 2010-Dec 2010; Aug 2012-Nov 2012
Tysabri: Feb 2011-March 2011 reaction
Gilenya: August 2011 reaction
Copaxone: October 2011 reaction
Tecfidera: May 2013 reaction

Last edited by daisy.girl; 08-14-2011 at 08:03 PM.
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