GregD,
I understand your questions, and this is why I think that this team will make a difference to pwp:
Tom Isaacs speaks to groups around the world. On a page in "health unlocked" (part of the Parkinson's Movement website), he posted
his thoughts on Sham Surgery as presented at a recent conference in Sweden. Tom is a world-reknown and highly respected PD advocate and speaker. When he speaks, people and orgs listen.
I truly hope it will become a recognized and respected place for all patient advocates to share ideas, to blog, to respond to blogs, to question, to create surveys, and to be heard. And finally, the folks behind this website will "... communicate our thoughts to opinion formers." It will become "the authentic voice of the community."
I believe this is what we have needed.
Jean