Quote:
Originally Posted by janejane
Hi NYT2!
Thanks! I was so excited to read about the special MRI. It has been so absolutely frustrating that my multiple MRI's don't show a thing, despite my symptoms! I was wondering if Dr. Aaron Filler's neurography would show scar tissue of my sciatic nerve, hamstring area, but Dr. Potter might just be the answer with her special MRI. I will try to see her. What is her first name? With her full name I can look for her phone online. What is her specilaty? Does that MRI test have a specific name or should I just tell her that I am looking to find where the scar tissue might be and she will know what to order? I really can't tell you how hopeful and happy your information has made me. I thank you so much. My docs and I have suspected there is scar tissue somewhere in my leg or pelvis for seven years now but knowing where has been sadly impossible.
Sorry to hear though, that you have RSD. I hope this is the answer for you. I hope we can continue to be in touch both of us because if I do have the hydrosection that could be useful information for you too, as it is a much less invasive procedure than surgery. And I really would love to see how are doing later on.
Hannah1234:
Thanks so much for the good wishes! I really appreciate it. I also hope that you get 10000% better very soon. You stay strong too as we, all together, will beat this thing.
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Hi Hannah,
I wrote a long post and then lost it. I'm using my daughters laptop, mine is down until I install a new hard drive, and her keyboard is so weird to me.
My scar tissue problem was upper extremity. I had 2 contracture releases done the 1st was not successful the second done at HSS was a complete success. I am not aware of the procedure you are talking about but my surgery which also including a ulnar nerve transposition was about 7 hours and the use of a CPM Machine almost immediately after surgery, fun, fun, fun. But I did have success and it was done with the RSD on board. But time was not on my side I had to do it to get the arm back.
The Hospital For Special Surgery is a wonderful place. Filled with just the best doctors, equipment, nurses etc. the food not so good. But there's a great deli just on the corner, my husband was a regular there.
I had a very odd injury. I have been told the chances of what happened to my arm when I fell, I was rollarblading, was 1 in 500,000. When a doctor makes a statement like that and he was not the first one I think I saw 6 surgeons before I got to HSS of course you start to ask many questions. The one thing I was told many times by not just my surgeon but my PM doctor, the many fellows that worked with me, the PT people is that nerve surgery is a very serious business and the surgeon must have extensive experience.. I was very happy with my whole journey through HSS. I have spend probably 30 days in that hospital if I ad up all the surgeries, ketamine procedures etc,.
I wish you the best.
Gabbycakes