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Originally Posted by Kelly in Oklahoma
I've been diagnosed with MMN w/ CB and finished Round #1 of IVIg treatments (5 treatments in a week). I've already noticed improvement. I'm wondering if others with MMN that have had IVIg treatments for years have regressed back over time or if some have maintained the same level of initial improvement. I'm curious about what to expect down the road. Thanks for any thoughts & info.
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Kelly,
From what I know about IVIG and MMN you could be looking forward to years of good health as I did (14), and that was after having MMN for 13 years before being treated. Some friends who were diagnosed and treated early needed only occasional infusions to maintain their levels.
There was gradual weakening over the years in my case, not painful, just annoying foot and wrist drop - to the point where now IVIG has ceased to work -but not complaining! Am looking for alternatives. Be glad to answer any further questions about my experience with MMN and IVIG. Best of luck. Chris