Roz, I fail to see how encouraging people to be open minded and avoid the pitfalls of over identifying with illness is hurting anyone. It is the most loving thing I can think of to do.

Dear Jen,

I did not get RSD till I was in my 40's, I am now 48. I had a wonderful life before RSD. I did not get DX correctly till I was 2 years into it. Katelynn needs a correct DX.

You are right about the Docs not knowing exactly what causes RSD. 3 years ago when I was DX I was told right away that they didn't know what caused it. But to every problem their is a solution. I was told to research as much as I could. I have told several MD's I want the root of the problem and not just the SX treated. I have had to be on very strong meds. where I could not even function on. I refuse to go into any MD's office blinded by my condition.

I love life, it's about learning, loving and living.

I believe in encouraging people to have HOPE, and do it in a loving, kind way. Hope is the biggest thing that has kept me going. Part 1 of 2