Quote:
Originally Posted by janejane
Gabbycakes:
Thanks for letting me know about your experience with Dr. Potter and for telling me about how good that whole hospital is. It really sounds like it is a great place with great doctors!
Sorry to hear about your surgeries but I am glad you had such a great team of specialsits on board. One chance in 500,000 and you got this. I would think that my chances of getting so sick were in that ball park too.
Not too long I posted in the old thread what the doctor told me about how to find doctors who do the Vitamin c. intravenous vitaminc c and magnesium have work great for me.
NYT2:
I wrote you a long PM. Thanks for the info! 
Michael:
I don't have any hopes of a peer reviewed study coming out soon. Thanks for your comments though. I hope I will be lucky if I have it done. I sure wish someone with rsd who has had it done could tell me how safe it is...
I don't have RSD in that part of my body (thigh) and PRP helped me a lot before. As long as hydrodissection does not causes rsd I should be fine.
Thank you all for your help! Hope you are havinga good day! |
Thanks, Janejane,
I have heard of the vitamin c a friend of mine swears by them and she has RSD and has been through hell. She is much better after much suffering and she swears by those vitamin shots. Thanks for the info.
It was quite a blow. Normal 1 second and the next a mess. Someday's I think if I did not find those doctor where would I be? When I finally made the commitment to HSS, my arm was a mess, I would of lost functioning completely if I didn't do what I did there. And honestly I was afraid. All the talk of all the surgeries with the RSD on board then came the ketamine not once but 3x's, traveling to Philly for boosters, that Dr. getting involved. Then came the legal fight which I don't know which was worse the surgeries or the trial, which I won. In NJ the law is very clear on slip and falls, thank god my husband went back the next morning and took pictures, they never even cleaned the blood up or the area where I fell. So that went on for 2 years, then came the disability fight, again took 2 years but I got it finally.
I had a wonderful career as a software consultant at one point working as a IBM/VAR which just was a wonderful experience and I loved it and miss it so much. Today I call myself a "Independent Business Consultant" it a fancy work for a traveling bookkeeper. But Social Security told me when I filed I could at least work PT, so I immediately went out and started this. They allow you to make a certain dollar amount before they deduct from your check so I just watch the dollars I make. Social Security does not care if you work 80 hours a week just don't go over that dollar amount. I find that so strange, but it is what it is.
But if anything good came out of it was a more appreciation of life, not just for me but for my husband and children. We lived the "american dream" and then had to adjust everything and it taught us all a very important lesson and today I think we a better people and a stronger family.
Thanks again,
gabbycakes