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Member
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Join Date: Feb 2011
Location: Blue Ridge Mnts of NC, USA
Posts: 680
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Member
Join Date: Feb 2011
Location: Blue Ridge Mnts of NC, USA
Posts: 680
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Kitty,
So sorry for what you're going through. This 'Monster in us' is very hard to live with. More harder at times than other.
My wife is very supportive. She has trouble understanding things I tell her at times but listens and helps when she can.
Lyrica is the only med I'm taking now but my neurologist suggest that I try narcotics. She has also prescribed anti-depressants which I'm trying to avoid.
Like you, when everybody else is hot and needs the a/c on I'm cold and the cool air bothers my RSD. So I have the air vents closed in my music room and I stay in here a lot.
When I go anywhere that's got a/c it bothers me. But the worst is when I get the chills and feeling like the flue. Also sometimes my head shakes up and down like small convulsions.
Hope for better days...
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