Thankyou guys, it really helped me figure out alot .. im sorry, but im still not sure how to reply the correct way so everyone that helped me can see me write this back. But you guys are exactly on point .. I do get an aura feeling coming on before i have my seizures.. And pokette, You are right on the money as to when i can feel myself getting the aura feeling , i do the same EXACT thing .. i tighten up my muscles into a fist and i squeeze really really hard and pretty much prevent me from having them, and for the most part it works .. I was just more concerned with the having them at night and waking up .. NEver understood, why it would be happening so frequently during those times .. Ive been dealing with this for half my life, and i know exactly all the feelings and things that trigger it .. But some of my doctors dont believe that people that have seizures can remember or hear whats going on and EVEN force myself out of them .. they think im crazy, but i keep telling them that this is how i get rid of them and when they happen during the night or waking up, its almost like i cant control it because at that point, all my muscles are relaxed, and they happen so fast, i dont even have a minute to alert someone or try and work my way out of them.. But, im very ver glad that you guys know where im coming from .. It is a very very big pain in the *** .. more frustrationg than anything.. im not too scared, but more ebarrassed if it were to happen in front of someone .. That is a crappy feeling .. And i just dont need anyone freaking out because i can hear them, and it makes me have them longer becuase i get so anxious when people get upset ..
I did have all neurological testing done though, so thats why it was confusing me .. i had the 24 hour eeg, sleep apnea testing done, and of course i didnt have a seizure the night the they did it .. so no doctor has ever seen my having them.. But i definitely go into one because my cheek startsts to twitch, arm goes numb, and i feel it coming on 30 seconds before so i dont have much time to tell anyone .. It has gotten so bad that im afraid to take my one dog out .. she is overweight and if i start to panic, its very hard for me to just ru upstairs with her . But, the way you guys secribed it, makes so much more sense and i can relate to you guys .. it does suck the life outta me when i have real bad ones in the morning, and i have too wait home, relaxi and until i feel better .. i just really want them to stop .. i know nerves play a major part, and they are most likely from anxiety issues, but i did not know vitamin b 12 helps with that .. Thankyou . I have my doctors tomorrw and im gong to mention to him .. See only thing, ive had every test done, but im not sure if i had an epilepsy test done or seen a specialist in that field .. bright lights do get me nervous and tingly, and DEF lack of sleep, anxiety, and hormones play a huge roll .. i am going to tell my doctor everything tomorrow and see if he can work something out with me .. I really appreciate alll your feedback and help and will be sure to check in with you guys tomorrow after the doctor .. I just want to make them go away .. OHH, SUE... can i ask you? what type of surgury did you go for to make them stop because i will do what ever it takes to get rid of these episodes, even if they calmed down to once every month or so i would take it over having them sometimes 4 to5 times a day and night ..
I will write more tomorrow, im very tired and hope to get some good sleep with no seizures .. thankyou all again for writing and welcoming me into the forum. i Feel very comfortable here and it makes me feel better that other people have the same problems .. good night everyone , i will be in touch tomorrow .. thx again .. Tiffani