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Old 08-19-2011, 06:43 AM
Porkette Porkette is offline
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Join Date: Aug 2006
Location: NY
Posts: 1,200
15 yr Member
Porkette Porkette is offline
Senior Member
 
Join Date: Aug 2006
Location: NY
Posts: 1,200
15 yr Member
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Hi Felisha,

Welcome to the forum! I'm sorry to hear that your daughter has been having sz. and that the diet didn't work. My advice to you is to get her to an Epileptologist if she hasn't seen one yet and be sure to go to an Epilesy Center which are often found at University Hospitals or big hospitals. You are correct heart problems can lead to sz. as well as when a person is sick with a cold or stomach bug because the illness messes up a persons body chemistry and can trigger sz. I don't mean to be rude but if I were in your place I would get a second opinion because I don't think this Dr. is updated on causes of epilepsy. You should have the Dr. order a PET scan along with a SPECT scan this will show what area of the brain is the most active and triggering sz. I would also order a special e.e.g. where they would flash different color lights one at a time your daughter may be photosensitive which means certain colors are triggering sz. for her. Another test they can do on her is audio and visual testing to see if certain sounds or colors and pictures are causing the sz. I've had epilepsy for 39 yrs. and I was 10 when I began to have sz. so I understand what you are going through. Keep your daughter away from anything with nutrasweet (aspartame) in it like diet soda and keep her away from cell phones because they have proven that both aspartame and cell phones can trigger sz. for many people causing to much electrical activity in the brain. If I may ask does your daughter sleep well at night? If she doesn't she may have a sleep disorder like sleep apnea and that can cause epilepsy for some people. I've found taking vitamin B12 once a day the biggest help to reduce my sz. Tell the Dr. you want a DNA test done on your daughter by doing this they can find what AED (sz. med) will work the best for her with the least side effects. It could have been some of the medication she was taking for her sz. that caused the problems with her stomach. This is what happened to me while taking mysoline (primidone) for over 20 yrs. the drug ate up the lining in my intestines and I had to see a gastro specialist to get things straightened out. Also take note of the weather if a low pressure is coming in sometimes that will trigger sz. for a person. I wish you and your daughter the best of luck and May God Bless You!

Sue
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