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Old 08-19-2011, 07:48 AM
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dmplaura dmplaura is offline
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Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
dmplaura dmplaura is offline
Magnate
dmplaura's Avatar
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
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Copaxone less than 1 year. I have very mild MS (sensory symptoms), so for me stabbing myself with a needle daily to remind myself I had MS wasn't a way of 'living'. Add to that I began to have muscle spams in my arms when injecting (so I was told to double inject my stomach and skip a shot - yes, let's still make sure she's paying LOTS of money to us by moving around shot locations! Durrrr ).

I did some thinking, reading.... while on C, I had already gone almost Swank MS diet anyways (cut red meat and less than 15 g Saturated Fat daily - no Trans Fat) and thought,

"You know what Laura? The DMDs are at most a 30% chance of slowing progression... no one can tell you if they're working, where's that 30% number coming from anyway? Oh right, we only put RRMS on C - funny my neuro even said the logic behind not putting other types of MS on C is because it would skew the success of the numbers potentially, thus causing financial harm to the pharmas *gag* - $1,600 a mo in 2009 for C, is this really worth it?"

Not to mention the side effects. Who likes nightmares of their families dying, or peeing the bed at age 30+? Goodbye Copaxone.

Just my own personal story... Copaxone may help some, so for them I'm truly happy. It was not for me. I eat well and exercise, and that's what keeps me happy and healthy. Not a needle every day with side effects that, for me, were intolerable.
__________________
2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
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