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Old 08-19-2011, 10:58 AM
Shadow1 Shadow1 is offline
Junior Member
 
Join Date: Jul 2011
Posts: 36
10 yr Member
Shadow1 Shadow1 is offline
Junior Member
 
Join Date: Jul 2011
Posts: 36
10 yr Member
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Quote:
Originally Posted by Louloutinks View Post
Hi again

just got back from the specialist (it wasn't the usual one I see) and he said the mri was normal and there is nothing wrong. I argued that there must be as I have constant numbness in my hand and all the other symptoms.

I asked him if TOS always shows on MRI and he said yes it does and that there is nothing trapped in the thoracic area.

I asked if any long term damage could be caused by this numbness and he said, if your hand gets weak then maybe come back. I told him eg if I get something in my eye, and I close my fingers together to get the some thing out of my eye then my hand feels weak (basically if doing a grasp type movement) and he just raised his eyebrows.

I feel I have been fobbed off and am not happy as I am the one with all the pain and numbness.

They are sending me to physio though - which doesn't make sense.

I saw a London rheumy yesterday who said even though the mri was normal he is not ruling out TOS - very confused.
Hi - I had an inital MRI with my arms down and it showed nothing wrong although I was having TOS symptoms (pain in chest, cold hands, loss of circulation, nerve compression). After those results came in NORMAL, the imaging place called the doctor and said that I was normal and they wanted me to go back in for another one. In this one, called a Magnetic Resonance Angiogram (MRA), they injected me with a contrast dye and I had to keep my arms above my head while in the machine. The results showed a at least a 90 percent blockage in my left subclavian artery and some blockage on my right side as well! Although not good news, it was good in the sense that it was confirmed that I have a problem. I"m fortunate to have doctors that right off the bat diagnosed it as TOS (first an spine doc and then a vascular surgeon). I don't know what your symptoms are exactly but you might want to inquire about an MRA. Good luck!
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Jomar (08-19-2011)