Dani started with ear pain and over a year has gone into stabbing ear pain, both sides of her jaw hurt all the time and extremely bad headaches. She has gone to an ENT, Oral surgeon, 3 primary Doctors, pain clinic Doctor and a Neurologist who put her on tegretol looked at the MRI and MRA and said they are Ok and her facial pain is on both sides of her face so it is not trigeminal neurolgia and said they can not help her. She has been in the Hospital 3 times in 1 month and one time her face was asymmetrical from the pain. I am not sure what she has. Her only diagnosis has been atypical facial neurolgia. She has been on many medications and she always has the worse side effects there is. We will probably go to Mayo Clinic in the near future. She has not seen a Rheumatologist and am not sure how to guide her. All the primary physicians do not guide her to anyone just give her pills, a Psychology consult, or states we can not help her anymore for this problem.
Any ideas would be greatly appreciated. I will tell her about this site.