AJ is in the hospital 300 miles from home. Her dad is with her.
The doctors have cut her oxy in half, and are giving her slightly
over the equivalent of her oral dose of Dilaudid in the pump,
if I read the online conversion charts correctly.
She's in great pain, worse than before, so bad she can barely
talk. The doctors won't be in until late this evening. DH called
the doctor this afternoon to let him know her pain is so bad.
The doctor told him that she has to get out from the comfort
level of her oral meds (comfort? Does 2 years of not being
able to sleep for the pain and being stuck in a wheelchair,
count as comfort?), that she is getting more than her oral dose
in her pump (true, of the oral dilaudid she was taking, but her
oral oxy dose has been cut from 960 mg a day to 480), and
that they would increase her meds tonight, but they wouldn't
give her enough to kill her. He said it's her last chance and
there's nothing else. He is supposed to be one of the pioneers,
the best in RSD treatment.

Then he said that she is a very anxious young woman, that he
knows it's hard for parents to see their child in pain, that maybe
her dad should go home, and that if we persist in meddling, they
will not proceed any further. We really don't want to meddle, but
we don't know what's going on. AJ is ready to crawl out of the
hospital. I thought they would get the pump working before they
cur her oral meds so much. We don't know what to do. Is she
going through withdrawal? Is the RSD spreading? She's begging
us to listen to her. What do we tell her?