I am in the UK and you cannot pick your specialists here! But then the treatment is free but if you get no answers the you do not get the right treatment.

Yup the doc was a loser!! By the way, what is a theraband?

Jo Mar the numbness is only on the left side of my foot and arm.
I can understand the tingling, but I do not understand how I can dig needles in myself without feeling a thing. It also seems to be in patches along and down my arm and this makes no sense to me as if it is the nerve, then surly it would be all the arm?? I also get a pulsating buzz on the top of my left ankle mainly at night time.

Sticky tissues...? What aer these Jo MAr?

Fully agree with delayed pain - I have been having physio for EDS but put it on hold to get results of this. But the doc did say that I need to strengthen my shoulders. Waste of space.