1st doc --> ER --> undiagnosed

2nd doc --> cardiologist --> undiagnosed

3rd doc --> chiro --> TOS

4th doc --> chiro --> TOS & skull misalignment

I didn't know at the time I should have checked with a vascular specialist. You'd think the ER or cardio would have suggested it, but it was actually the 3rd chiro that did!

But I'm making progress with my current chiro who has also been treating various alignment problems. So combined with things I'm doing at home, that's my present course. Also, I have the Edgelow home PT system on order and looking forward to cracking open the DVD and "rib mobilizer" and seeing what that's all about.

I'm not that interested in having a vascular surgeon cut out my neck muscles and top rib, which is mostly what they do for this condition. Of course, you need to see one if you want a PT referral. And it sounds like you are seeing a good one, so you should follow through for all the Q&A, diagnosis, etc. which I'm sure you're doing.

Re: location and severity, the severity varied immensely with some days feeling very normal and other days just awful. Location varied somewhat too, but with certain spots being more frequently troublesome than others. Also, my problems are 90% on the left.

As my symptoms have declined, the variance in the location has declined as well with fewer spots giving me trouble.

HTH