Thanks for your support. It does help. I do think these doctors
are good, or at least they're supposed to be. They just never
mentioned that she'd have to go through this much pain before
she knew if the pump would work. Tonight they told her even
if she quits, she'll have to wait a couple of days to reverse
everything. The head guy, the one who threatened to dump her
case, is no good with people, but supposed to be very good
technically. His associate is much better with people, but still
can't offer much for her pain.

She is in her mid 20's, but has been in pain since she was 14,
with one brief respite of a couple of years. In spite of that, she
graduated with her class, made it through junior college and
got a job, was planning to move across the country when the
RSD hit again and put her in a wheelchair. It's hard for her to
trust doctors, since every procedure in the past has made her
worse. I know that being in pain can made thinking logically
so hard, and it seems to go on for eternity when you're in it.
I don't think the doctors really know what it's like, or maybe
they just see so much of it they get a little hardened. If only
they could offer more understanding and less ego it would
be so much better.

One thing the doctor said is that oxycontin can actually make
pain worse, so you need more and more, but it becomes a circle.
Does anyone know what that is about? Does anyone know how
long the pain will be this bad?

thanks,
AJ's mom