I was diagnosed with MG in 2009. My symptoms only started 12 days before I ended up in the emergency room. I did have a large thymoma removed which started the thought process of a MG diagnosis. I also am ACh negative and seronegative, however I am striated muscle positive, which is a rare symptom of MG.

Luckily I have a very good neurologist and an even more determined husband who has spent so much time researching this illness. I am not able to take Mestinon, which is the first thing they tried after the thymoma was removed and I started having the extreme symptoms. I had a bad reaction which ended up putting me in ICU for a week, but I have an additional diagnosis of Stiff Person Syndrome which I believe played into that reaction.

I wish you luck in getting a definitive diagnosis. From reading the many comments on this site, I am beginning to learn so much about how hard this illness is to pin down and how long it takes some people to reach the final conclusion.

Southern Bell