Hi, and welcome. I want to strongly encourage you to pursue this with a neurologist who specializes if not in MG itself, at least in the diagnosis of neuromuscular diseases.

There are many of us here who are diagnosed with MG even though we test negative for the AChR antibodies! And many more who only tested positive after several tries. There are also other antibodies that can cause MG (like the MuSK antibody) that you should be tested for.

I have never had a positive blood test, but I was diagnosed with MG after three Single Fiber EMGs--the first two were borderline, but I traveled a couple of hours to see a specialist for the third, and he thought the test was conclusive. It's a specialized test that not every neurologist knows how to perform. Some people are even diagnosed only on the basis of their response to Mestinon (pyridostigmine). Many neurologists who have experience with MG would be willing to give someone with your symptoms a trial run with this drug.

A lot of us here--most of us, probably--had difficulty getting our diagnosis, so we know how hard it is to be in your position. For me, that's been the worst part. So we understand what you're going through, and we wish you all the best on this journey. Please feel free to ask questions here.

Abby