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Old 08-26-2011, 08:05 AM
SmilinEyesMs305 SmilinEyesMs305 is offline
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Join Date: Jun 2011
Posts: 242
10 yr Member
SmilinEyesMs305 SmilinEyesMs305 is offline
Member
 
Join Date: Jun 2011
Posts: 242
10 yr Member
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I had my car accident on 3/8/11. 6th months post accident I am still dealing with dizziness, headaches, visual problems, light/hearing sensitivity, intense mood swings, disabling fatigue etc.

My best advice would be to find a neurologist who has a great deal of experience with TBI and PCS. Although neurologists know a great deal about the body, many are CLUELESS when it comes to PCS. After 3 months of feeling awful 24/7, my first neurologist told me that I was basically crazy and that my symptoms could not be related to my accident at this point.

At that point I researched other doctors and found a great team of Drs who deal exclusively with concussion cases. I am now involved in vestibular therapy, physical therapy and vision therapy and also taking medication for my anxiety, anger and depression. Although my progress is slow, there finally is some progress and I feel better knowing I'm doing some active to get better.

As for your employment, I too tried to return to work after my accident. However, the strain it was putting on my made everything worse. I felt I couldn't keep pushing myself anymore, and my employer felt I was struggling as well.

I therefore went on medical leave. When that was exhausted, I tried again to return, but much to the same result. My dr put me back on leave. He said that if I stayed working, my brain would be unable to work on healing because of the strain I was putting on it daily and that I would not get better until my brain's only "job" was to focus on healing. He was right.

Six months later, I am still not working. But rather work daily with various therapies and resting. You brain WILL NOT heal or you will not feel any better until you take the strain of your work away. Can you take a medical leave? or have your dr or new neurologist put you on leave? I hate that I am no longer at my job and it was a tough decision to make financially, but I couldn't go on the way I was.

I am finally making progress, albeit slowly. However, with no work related strain, my brain is starting to heal, and I feel like I'm among the living again...

My advice to you:

1) Find a neurologist who has a great deal of experience in TBI/ PCS. Although neurologist have a wealth of information, unless you find one who has experience with what you are going through, they won't be very helpful. Finding one who does, has made a HUGE difference for me.

2) Take a medical leave or whatever you need to do to stop working, so that your brain can focus solely on healing. If someone had told me this at the very beginning, I don't think I would have been down and out for so long. However, I tried to push through, and wasted time that my brain could have been healing.

3) Take your wife with you to your medical appointments. My boyfriend really struggled to see that PCS could be so long lasting and so debilitating, until he came with my to see my concussion doctor. As we talked about my symptoms, the Dr stressed how devestating and long lasting they could be, and that I needed to be completely focused on relaxing, even if that meant some household responsibilities had to be passed off to someone else. It was really eye opening for him, and has mad my recovery a lot easier. I know feel like I have an ally against my PCS and not someone who thinks I should be better by now and just faking it.

I urge you to really think about these three things. Before I did these, I continued a daily nonexistence of pain, strain and being constantly bombarded with PCS symptoms. I am now finally, 6 months later, slowly starting to come out of the whole that consumed my life. I wish the same for you.
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