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Old 08-26-2011, 11:38 AM
JB63 JB63 is offline
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Join Date: Jun 2011
Location: NY
Posts: 141
10 yr Member
JB63 JB63 is offline
Member
 
Join Date: Jun 2011
Location: NY
Posts: 141
10 yr Member
Default It's no fun...

to be twitching 24 hours a day. I know what you are going through and it is a real ****** and quite frightening wondering what the heck is happening.

I started in March 2011 4 months after my weakness and foot drop started I was given a BFS diagnosis too, even with foot drop, weakness, and abnormal EMG, idiopathic PN. After much time and almost begging for an explaination, tired of hearing "don't worry" I was told the BFS was a response to my irritated and very irritable nervous system.

I took mag ox which really did not help and learned to live with them. I am no longer anxious about them, they are disruptive at night but....like many others
I was just started on Lyrica for neuropathic pain and tho' I hate the side effects, my fasics greatly decreased in intensity and they are occuring much less. Took the med for a week before the improvement. Individual response to Lyrica is varied, quite frankly if I was offered the medication strictly for fasiculations, I would chose to twitch.
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