You've found a wonderful place for support, care, and lots of information!
I'm so sorry for these painful conditions you are faced with.
There are many wonderful forums here at NT - Scroll down the list in the main menu and peek in anywhere.

I'm wondering about this pain and weakness you describe.
Has anyone mentioned anything to you about possible neuropathy? The Peripheral Neuropathy forum is one of the most active forums here and there is so much information on this.
Here's the direct link to get you there
http://neurotalk.psychcentral.com/fo...aysprune=&f=20

Pay special attention to the top of the screen when you get there, as there is much info to be had. It's called Peripheral Neuropathy tips, supplements, etc. Also in the section called 'Sticky's'

I sure hope you can start getting answers to your dilema soon.
Just holler if you need help finding your way around the forums.

Caring,
Rae