I'm so glad you found this place. Lots of us know the frustration that comes of having clear symptoms but no diagnosis. I've had a lump in my stomach for 15 years of getting steadily worse but having no disease to treat.
The camaraderie of this place will help you where science leaves off (or doesnt start). Folks with similar experience to yours will share that, along with their humor, hopes, frustration, & best tips for surviving what would stop most ordinary humans in their tracks.
So introduce yourself around, start threads by reposting your introductory post on the several Forums, & start asking questions. Keep asking till you have enough answers to ask all new questions.
Take good care. Keep coming back.