Quote:
Originally Posted by Grace and Peace
Thank you for what you just said. CRPS is not for the weak.....that gives me so much strength as I can't stop crying. The reality of this has hit me and I can't stop crying.

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You are so right, Kathy, RSD is not for the weak. I am really sick and tired of blaming my pain on the weather. This evening, my leg started with the painful skin deal. That is one of the symptoms that I really loathe and there is no relief from it. It looks like I won't get any sleep tonight because as we well know it goes on and on and we never know when it will end. I have just started asking for meds for breakthrough pain because it just constantly eats at my brain. Even though I have never considered taking my own life because of the pain, I can see why some people who don't have a support system or ways to occupy their time, kill themselves.
We all HAVE to reach out when we need help. I have said this hundreds of times, if I had not found this board when I did I would have lost my mind! There is always someone one here who is willing to give feedback or a shoulder to cry on. My neurologist had a fit when I told him I joined this board. He said that my symptoms would get worse because I would hear other's stories and develop them. This is sooo far from the truth. If I hadn't joined this board I wouldn't know what was going on with my leg and the spreading to my opposite arm. I am really not thrilled with any neurologist right now because they say one thing and do the other!