Quote:
Originally Posted by glenntaj
--any other immune-modulating therapies, ranging from the blood cancer drug families to IVIg and or plasma exchange?
Admittedly, the latter two are more likely to be recommended for those with motor symptoms, but they have been used in more sensory-based cases as well (especially in suspected Sjogren's).
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No other immune therapies yet. My original neurologist tried for IVIG but insurance said no. So far just the anti-seizures (which I was not able to take to many side effects), cymbalta, lyrica and now plaquinal. I didn't realize plasma exchange was a treatment for this.
My neuropathy seems to be getting a lot worse. I can't let my heels touch the bed anymore. I can't have my clothes rub againest my right hip. Certain parts of my arms are painful to the touch. The twitches are enough to drive me crazy. Sometimes I just feel like going to bed and crying. The pain can get unbearable sometimes. But I know I don't have to tell anyone here that.
Usually I am not this discouraged by it. Sometimes it gets to me.
Have you had IVIG or plasma exchange?
thanks,
hopeful