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Old 08-30-2011, 06:57 PM
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
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Hi, GrannyJo. I doubt any of us feel comfortable giving specific medical advice, especially for someone with obvious choking issues. I wouldn't want you to get any worse. Do you have a neurologist you can talk to?

My first thought was maybe you have an infection from the feeding tube. Then I wondered if something you are being fed could be causing an allergy. Or do you have seasonal allergies?

Children's liquid Claritin can be titrated so that you can try a very small dose, like even 1/4 of a teaspoon. But, again, you really need to talk to your doctor(s) about all of this.

http://www.claritin.com/claritin/en/...oredSyrup.jspa

Mucinex might help too but, again, you need to see if that is good for you or not. Both an antihistamine and Mucinex can dry you out and you need to have a good flow of fluid, especially with a feeding tube. Antihistamines do the opposite of what Mestinon does, so it might make your MG worse. I can handle a small amount of liquid Benadryl but that's me. Everyone responds to drugs differently.

You can try a cold air humidifier too. Or steam from boiled water (to breathe in). Again, there are a lot of tips doctors "should" be giving you!

My best advice is to go in and have a conversation with your primary doctor. Ask them to keep your neuro in the loop by sending over any notes. And who did your feeding tube? How long have you had it? There's a lot to think about and it's best to have doctors help you with all of this.

I hope you find some relief soon!

Annie
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