Randy, All of my emotions act like they are on, well, steroids when I take steroids. I can't do them. They also cause bradycardia, probably from fluid retention. And, yeah, really not a good idea to go off of steroids without doctors monitoring you since you can have an adrenal crisis and die!

Have you tried IVIG or plasmapheresis?

Since there can be other things that make MG worse, do you have yearly checkups with your primary to look at things like your thyroid, metabolic panel, B12, vitamin D, etc.?

I hope you can find a balance that works better for you. Hang in there.

Annie