I have been taking 40 mg of Baclofen for years because of my Cerebral Palsy and so many people have told me about their side effects. I have never suffered any, as far as I can tell, as I have been on it as long as I can remember. I also take Klonopin and haven't had any side effects either. I have had severe side effects from Lyrica...that med is the absolute devil to me. It did a great job taking away the pain, but I hallucinated terribley with it and I felt like I was going crazy. Neurontin did the same thing AND made me temporarily lose my eyesight. Nothing like a hallucinating blind person running around the house scaring the bajesus out of my family.
After all the trials and tribulations of switching meds, I am somewhat getting as "normal" as I can be, now I take Norco, Tramadol for breakthrough pain, Elavil, Celexa, Baclofen, and Topril for high blood pressure from the pain. 19 pills a day just so I can get up and walk. I know from experience that there will never be anything to completely take away the pain. Spinal blocks are out of the question because my CP effects my legs and I will not risk being paralized. I live in an area where I have no access to Ketamine, but I am not sure if I am brave enogh to try it.
I am finally getting through to my family and friends that some days there is nothing that will help on some days and we have all come to an understanding. If I don't get out of bed when everyone else is up, it's a good idea to just stay away. Since I have come to a somewhat happy medium with my meds those bad days are few and far between, unless of course, there is an earthquake and a hurricane within a four day span and I can't walk or get out of bed, they have learned to wait on me...LOL!
I just want to say that since coming to this board, Michael, your info has been invaluable and I soo appreciate each and every post that you write even if it doesn't pertain to me, I can pass it on to 2 of my closest friends who have RSD. They are amazed, as am I, how you research and come up with the right article about any problem that someone is having.
Thanks once again