to be given several diagnostic opinions and continue to get worse. I too feel if they know what it is I can be treated and get better, but this is not always the reality. No doc will tell you that you will get better for certain, CYA from lawsuits, I guess. All you want to do is get better, regardless of the cause, and it is a long and heartbreaking journey. I hope you can get some resolution soon. I know it is little consolation, but most of us here have gone though this crazy uncertainty, so rant away, we hear you.

I am waiting to see the neuro at the end of the month about IVIG. I do not know if insurance will pay. It is for diagnostic purposes. 2 doses and eval for improvement. I have a new component to my motor PN...pins and needles in my feet, entering the sensory zone.