I'm sorry you can't get a solid answer on what is going on. It might be time to see some other specialists.

When was the last time you had an echocardiogram or a stress test? Have you had either? Muscle weakness is not the only thing that can cause difficulty with breathing. It would be a good idea to be evaluated by a cardiologist.

Have they done a brain/neck MRI? Did someone say you had CNS lesions? Have they done a differential on "fatigue," not the weakness but the sleepy tired variety.

Ativan can make MG worse, so please be careful with that drug. Have you read the prescribing info on it? It's sort of funny how that's their "go to" drug of choice anytime a patient looks or acts anxious, even on an ABG. When in doubt, go for the "psych" diagnosis!

Are you anemic? Have you had a bunch of basic testing done lately by your primary doctor?

Do you have copies of any metabolic panels they may have done (venous serum, not the arterial blood gas)?

Something is "off" and what you don't get in an emergency room or hospital - at least not very often - is diagnostics. It's as if they're allergic to diagnosing anything. So, you'll have to see some other doctors to get to the bottom of this. Just don't wear yourself out into another crisis!

Seriously, I might be concerned about things like pulmonary hypertension. MG could be causing this mixed breathing results though.

I really hope you can get answers soon. You've been really struggling for a long time.

Annie