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Old 09-01-2011, 12:23 AM
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alice md alice md is offline
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Join Date: Sep 2009
Posts: 884
15 yr Member
alice md alice md is offline
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alice md's Avatar
 
Join Date: Sep 2009
Posts: 884
15 yr Member
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Quote:
I'm sorry you can't get a solid answer on what is going on. It might be time to see some other specialists.
I fully agree with that. From my experience, when physicians start giving conflicting information, unreasonable explanations or suggest emotional problems, it usually means that:

1. they don't know what the heck is going on.

2. they don't have and don't think they should put the efforts to have a reasonable explanation for it.

3. They aren't honest enough with themselves and you, to admit that this is beyond their level of knowledge/experience.

Quote:
Can I just go around with a NIF that low?!!
The answer is yes, you can (as obviously you are) but why should you?
why should you suffer from weakness, fatigue, breathing difficulties etc. and made to think you are "anxious" (which most likely you are. who wouldn't be when suffering from such symptoms and receiving confusing and conflicting information, instead of proper help and support?)

And I agree with your neurologist that it is a viscous cycle, but not the one he thinks. You feel unwell and you come for help, after which you are also made to doubt yourself and feel that it is up to you to find the answers they are incapable of providing. As if it is not hard enough to deal with this illness itself.

Hope you do find some reasonable answers soon.
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