Quote:
Originally Posted by calracci
Hi CanadianPain, so sorry for what you're going thru. I've been very close to that myself so can really empathize. Fortunately, treatment brought my swelling down. I had the spinal nerve blocks,4, a massage therapy called 'milking' that really helped, and one of the big problems was Lyrica also whicch was causing swelling. I switched to Topomax instead with allmost instant results. I was lucky enouth to find the one in a million drs and pts that actually knew about rsd and the special pt really helped also. Now I'm in VA with a new spread to my hip, almost out of meds and in desperate need of a new pm dr and can't find one. At any rate, I hope some of that is stuff you can try.
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Hello Canadian Pain....
I want to check back in with you to see how you are doing....! I have to say RSD plays havoic with our bodies...so badly right down to body temperature regulation is awful...My upper leg, lymph node area is very sensitive and ugly is the word for the pain....I'm sorry your have to meet us under these circumstances...this disease is an ugly 4headed animal...I know amputation in your husbands situation is probable but please, make that your very last resort...very last...as phantom pain is real...so real!!
You have us!!!
Take care,
Kathy
P.S..you like that keep smilin handle?? It is true to my heart...it has to be that way...bring the love from with in...